Tag Archive for Ushers

14 Aug 2018
Blind Blog • Holidays

Welcome to Glasgow

The story starts here The start of an adventure… 

The sun was warm, although the sky was grey; the air reminded me of London, yet the feeling I got from this city was very different.  It was as if when I spoke people softened.

Maybe it was hearing my southern English accent or maybe it was just the way I spoke.  Whatever it was, it was very welcoming.

The train assistant walked me out onto the street beside Glasgow Central station and told me to turn right and then right again at the corner.  To go to the crossing and I would find myself beside the river, from there I should turn right again and walk alongside The Clyde and I would reach The Glasgow Crowne Plaza.

Walking towards the Clyde had another reason; according to google maps, it was where the closest patch of grass was for Fizz to be able to have her breakfast and do ‘her business’ after all I was very aware that she had been on a train for eight hours without any option of relief!

The walk was lovely, calming yet refreshing and i was able to enjoy the varying architecture and engineering of the many different bridges we passed.  (I later discovered just how many bridges there where)

The hotel was sat just after an odd ‘armadillo’ shaped building.  I later discovered this to be The SEC Armadillo (yup that its official name) beside the SSE Hydro, a large exhibition, show and conference space.

Photograph shows the side of The SEC, the building is shaped like an armadillo shell.

While on the other side of the river there was The Glasgow Science Centre, IMAX cinema and The Glasgow Tower.  But given the mix and mismatch of buildings and paving shows how there has been an increase in renovation and regeneration within the area in recent years.

Photograph is taken beside the river Clyde railing, showing across the river with BBC Scotland on the left, with The Glasgow science centre dome shaped building along with The Glasgow tower on the right of the image, The imax cinema can be partly seen in between the bbc building and the science centre

This would do nicely, very nicely as a base to explore from.  Surprisingly even at 8am in the morning my hotel room was ready for me, so instead of just leaving my bag at the hotel, I was able to check in, refresh with a lovely shower and sort myself out read for an adventure.

The hotel was beautiful, with 16 floors I took the opportunity to go upto the very top floor to look at the views (after photographing them and then zooming in) here are just a few of them.

Photograph shows the view of The Glasgow Tower and Science Centre across the river Clyde and a bridge taken from the 16thfloor of the hotel

When initially researching the hotel I had found that there was a train station closer to the hotel, but because this would have been involving walking away from the grass area i had decided against it originally.  However I re-looked at it as a way to get back into the city centre for part of my exploration.

And when I did I discovered not only that the train station was just 3 minutes walk away, but that it was fully accessible over a large dual carriageway thanks to this beautifully designed fully covered in, ramped bridge.

Can you tell that the design geek in me was happy?Photograph of red steel girders of a covered over path and cycle path, showing the red and green paths with an arch over the top which is totally enclosed


Second photograph shows the arch of the red girders forming over the top of the passageway looking down on the ramp with the green and red path for cycles and pedestrians.The train took me less than 5 minutes to travel back into the center of Glasgow.  Where I quickly found that my google maps was struggling a little because of the high buildings and built up area just like it does in London.

We (Fizz and I) walked for hours, admiring buildings, discovering Glasgow Queen Street station which would be the station I would need to continue my travel later.  And in finding other station just a few moments walk from The Central Station I discovered this beautiful mosaic.

Photograph of Mosaic at Glasgow Queen Street railway station, showing the river cliyde and bridge on the left and the buildings of Glasgow on the left.

I could continue to bore you with photographs from around Glasgow, but actually all I will say is that I walked over 20,000 steps in this beautiful city and saw some amazing buildings along with meeting many MANY many tourists from lots of different countries.

Fizz walked her paws off and she was a superstar for me.  With the odd little ‘mischievous quirk’ when she discovered a near by costa and clearly felt we had walked enough for the moment and walked me quickly to the crossing, causing traffic to stop before I had realised what her plans were …

Who am i to argue with a guide dog?

Stop, refuelled and ready for more…. off we go again.

TO BE CONTINUED …

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13 Aug 2018
Blind Blog • Holidays

All Aboard

Stock photograph of Glasgow Central Station sign

The story starts here The start of an adventure… 

With a coffee in hand, along with my suitcase, book bag, handbag and guide dog I soon found the mobility assistance within London Euston Railway station.  My assistance had been pre-booked so at just after 22:00 i was guided to my train.

The man assisting me happily took my case and my book bag and off we went.

It was a very different ‘check-in’ for The Caladonian Sleeper.  It reminded me more of checking in to a flight.

First I checked in and was informed by the staff that I would be upgraded to a berth, they allocated me the ‘accessibile berth’ so that I was directly beside the toilet and just a door away from the lounge car.

The train measured over a quarter of a mile long and I was towards the furthest end.  This is because the train that leaves Euston travels towards Scotland as one train, before splitting; with one part going towards Edinburgh and the other part towards Glasgow.

Photograph is of the side of The Caladonian Sleeper train carriage from the platform

Once onboard the train, my room wasn’t quite ready, so I was seated in the lounge car where I was able to enjoy reading the extensive whiskey menu before I settled for a glass of red wine; before making myself and Fizz comfortable for the night in our berth.

Photograph from the open electronic door on my berth, showing the open and close panel on the left, Fizz sat in front of the single bed which has an orange hand rail and a top bunk bed that is seen at the top of the picturePhotograph is taken from where I sat in the bottom bunk in the berth, showing the width of the bed, with a counter at the end of the bed and the sink with a bottle of water on the side

The bed was comfortable, I took the extra pillows off the top bunk and although I looked at the little ‘sleep pack’ that was sat on the bed, I chose not to make use of the eye mask or ear plugs.  For my first ever sleeper journey I wanted to be as aware of my surroundings as possible.

I plugged my phone and watch in the USB ports, worked out which switch was for the main light and the bed light; popped to the loo again for one last time and tucked in to bed to listen to my audio book all before the train had even left the station.

This was a school girl error as I suddenly felt very aware and awake when the train did start moving.  Especially at the beginning when we were stopping at other London stations (just like a normal train would) so it was not until we were clear of London that I found myself getting comfortable again and drifting off to sleep.

I remember waking several times throughout the night, but there was not a clear reason for it.  It wasn’t until I awoke in a panic when the train seemed to ‘turn off’ that I got a reasonable nights sleep.

My panic awakening was because I felt that we must surely have arrived in Glasgow, although upon reaching my phone I realised I was over an hour early for the arrival time of Glasgow, let alone for the extra thirty minutes I had to vacate my room once we did arrive.

So I took the time to get dressed and raise the blind in my room to let the Scottish scenery in.  I even made myself a Herbalife shake for breakfast and got packed up.

Photograph of the open blind within my birth showing the countryside with the sink and worktop in the foreground

It wasn’t long before we pulled into Glasgow Central Station and the kind staff gave me a bottle of apple juice and informed me that my requested station assistance was ready to guide me from the train to the exit of the station.

It was lovely to walk into a quiet station (being 7:10 on a Tuesday morning). The rail assistance asked me where I was heading and asked if I needed help getting a taxi, I politely informed him that I was going to head to my hotel to drop off my case and enable Fizz to stretch her paws along The River Clyde.

Because thanks to more support on social media and google maps I knew all I had to do was walk toward the river and then along it for 19 minutes to reach my base for the next day and a half.  The Glasgow Crowne Plaza.

TO BE CONTINUED …

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13 Aug 2018
Blind Blog • Holidays

The start of an adventure – But first … London.

When opportunity presents itself, take its hand and let it lead you beyond your comfort zone.

A fellow VI friend informed me of an upgrade available to me as a guide dog owner to sleep in a cabin overnight on a train for the cost of a seated ticket.

The Caledonian Sleeper from London to Scotland gave me just such opportunity.  So in planning a trip I had hoped to take with my CPiC I booked a trip from London to Glasgow.

A journey which soon gave me the option to either cancel or put on my ‘big girl pants on’ to go alone….

Cancelling wasn’t really ever an option, as I would loose money not only on tickets, but on rooms already booked; plus my pure stubborn nature wouldn’t allow it.  So I decided to go alone (with my guiding girl Fizz) and a new plan was made.

London to Glasgow was recommended to me as Edinburgh was hosting The Fringe Festival.

So my plan started to come together.  I would travel to London on Monday, to catch the 23.20 sleeper out of Euston to Glasgow.

Monday was my day to explore London.

London is somewhere I have been many times before, however with my suitcase I wanted to stay close to Euston.  But just getting there wasn’t so simple.

Having used Euston Tube station as an interchange before for the northern line I was aware that it only had escalator access to street level.  So I made the brave (slightly silly) decision to get the tube to Kings Cross and walk back to Euston.

The walk was the easy bit, but the different lifts and levels of Kings Cross was a bit of a ‘challenge’ to say the least.  But one I achieved on my own.  The opportunity was there to ask for assistance, but I chose to put my problem solvcing hat on and just ‘get on with it’  Afterall, I have been to Kings Cross before and if in my mind if i couldn’t handle the tube, how would I manage Glasgow?

Hitting Kings Cross also gave me the opportunity to work out a green space for Fizz because with planned engineering works at Euston at the weekend, we would be returning to Kings Cross.  Thanks to the power of social media, I was made aware of a flower bed to the side of the station.

The flower bed was in fact right beside The British Library, a building that has always fascinated me.  So with time to kill I took the opportunity to go in.

WOW …..

The security staff were amazing, from explaining the bag search, to using a body scan wand on me and Fizz and continuing to explain it all to me; to then walking us down the ramps to the cloakrooms so I could have my suitcase stored while I explored.

Sadly there were no large print maps available, but as I explained to the staff that I used my phone as a magnifier they quickly radioed through to the other room attendants and security to make them aware that

“the blonde haired woman with the black guide dog who is deafblind has permission to use her phone as an aid to assist her, she isn’t taking photos, but simply magnifying the signs to enable her to enjoy her visit.’

This made me feel so very welcome and enabled me to enjoy my visit; while breaking down barriers for other visitors, who stopped to ask me how I was managing with the maps and signage.

I never went to look at the books (I do want to do this, but think it would be much easier with a sighted assistant) I purely went to look at the building…. The way the levels are open, the way the skylights are positioned, and I wasn’t disappointed.

Photograph shows the stripped skylights that run parallel to each other in a triangular flat roof of The British Library

Photograph shows rounded stairwells and the skylights again from inside The British Library

I enjoyed the fact that I could sit on each level, watch the world go by and enjoy the different ways in which other people used the space.

Because despite my failing sight, I love to read and I have always had a fascination with libraries.  So for a few hours after I explored the space I sat down with a comfy spot for Fizz and read my latest book. (Which is for another blog in the future)

This was just the calming and relaxed start to my adventure I needed before I met up with a climbing friend for a late supper.

We sat and talked, we ate, we drank and then realised this is the first time we have ever met outside of a climbing wall or competition setting.

And before I knew it, it was time to catch my train.

I felt nervous.

I felt excited.

I felt exhausted.

So, with a quick stop at Starbucks I went to find the assisted travel desk to board my train.

TO BE CONTINUED …

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18 Jul 2018
Blind Blog • Days Out

Comfort zones

Prolonged hot weather and guide dogs don’t mix.  So where I have been using my cane for all ‘ESSENTIAL’ journeys and cancelling those I could, the length of this heatwave is getting rediculous now!

I can’t keep cancelling things, I can’t keep letting people down.  I can’t keep letting myself down!

Then a very such event popped up in the diary.  An event that no-one would have judged me for for not attending; but one I really wanted to go to and be part of.  So with some extra planning I didn’t let myself cancel.

I even arranged a ‘puppy sitter’ for my faithful Fizz so she would have company and I could take my time….. Also as this event saw me travelling to London it wouldn’t have been fair on her just having the neighbour pop in every few hours.

Yup, you read that right…. I went to London; more so I went to London dogless!

The event was facilitating and supporting route setting for an informal para-comp being hosted by VauxWall Bouldering Centre and Paraclimbing London.

The wall wanted to run the competition to enable abled bodied, non-sensory-Impaired climbers to gain an understanding of how someone could climb with differing abilities.  The competition was also set up so that those with impairments could try out bouldering or improve on what they were already doing.

Being a very hot day meant that London would feel EVEN HOTTER to an outsider like me.  The event was also set to take place on the very same day that The Gay Pride Parade marched on London; and if that’s wasn’t enough, it was also the day that the England Football team got into the Quarter Finals of the World Cup for the first time in decades!

So, as the title suggests ….. Who needs a comfort zone anyway?

Maybe it was the heat beginning to take its toll.  Maybe it was the chance to climb.  Maybe it was simply the fact that I felt I needed to prove to MYSELF that I could do this….. Who knows.

Anyway,  train ticket bought, journey planned and even altered so I didn’t have to tube through London with my cane. (Vauxhall is just one change at Clapham Junction-a station I have regularly used) and I even (virtually) walked the route from the station to Starbucks and then onto VauxWall via Google Streetview.

I planned to arrive early, sadly delays due to network rail engineering works and cancelled trains changed that for me.  However it did mean that I arrived ON TIME!

Selfie photograph of me sat inside VauxWall with people climbing behind me and the signage for VauxWall behind me

The climbing was great fun, even though I sustained an injury to my left hip and right knee.  Paraclimbing London and VauxWall had a brilliant turn out (despite the weather, pride and football) And I found myself only leaving 30 minutes before I had originally planned; in case there were similar issues on the way home.

It wasn’t easy to navigate major (or even minor) railway stations with my cane.  It wasn’t easy navigating where the door to Starbucks was and it most certainly wasn’t easy to navigate finding a seat (or even assistance) on the train.

But I did do it.

Big tick to me.

Although I wouldn’t do it again out of choice!

Its good to challenge yourself some times, it’s good to know that barring the odd ‘rib-jab’ my cane akills are still pretty good.

 

Panoramic photograph of the room hosting the competition in VauxWall with people stood around and some climbing

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15 Jul 2018
Blind Blog • Days Out

When my disability felt disabling

This weekend I had a real wobble; anxiety, panic, fear and upset all rolled into one.  This weekend didn’t start off very well.

There are times when people say how inspirational or how positive I am, well this weekend I wasn’t any of these things.  In fact I felt like I was being penalised because of my sight and hearing issues. And I just wanted to leave where I was, give up on my plans for the weekend and walk away from it all.

Thankfully I was surrounded by some great friends; who didn’t allow the negativity to get to me, who stepped up and even stepped in to support me and change things around….. And for this I have gratitude.  Because what started out pretty shitty ended up being pretty AMAZING.

This weekend I attended a MAHOOSIVE Herbalife training event called ‘Summer Spectacular’  This training consisted of two days of training, stories and information from not only some of the best in the UK part of Herbalife, but also some of the best from America, France and South Africa.  Men and woman within the business that were not within my immediate reach.

So my ticket for the event was bought, childcare sorted, transport and sleeping arrangements sorted.  I had the support of my amazing team so I knew that both me and Fizz would be ok.

The training was at a venue I hadn’t been to before, but that was ok because an hour or so on google and I had found enough images of the venue to feel that I had a good enough virtual awareness of it to get through.  There was even a Starbucks on site, what more could I ask for?

The venue; The International Conference Centre (ICC) in Birmingham was also only a short ten minute walk from the apartment we were staying in AND there were plenty of grass areas between the two for me to know that Fizz’s needs were catered for also.

Saturday morning came and while my team mates were taking part in a very large ‘Fitclub’  I was able to grab a coffee, get my bearings and feel prepared for the next few days.

We came to entering the training room and a member of staff quickly found me (having the only dog in the building will get you noticed!!)

My team mates explained (because it was too loud for me to hold a conversation) that I would need to be seated near the front with space for both me and Fizz, but not in a direct walk-way as this could put Fizz and others in danger (black dog in a dark venue is a real trip hazard)

So, the staff guided me down the steps of the auditorium and sat me at the front, but with space the side where Fizz would be able to lay out.  Brilliant, a seat was allocated for my team mate too and I thought all was ok.  That was until the music started.  It was not that it was LOUD.  It was the fact that it was coming from a large speaker right beside where Fizz was to be able to rest…. let’s just say, she would have probably been more likely to burst an ear drum than relax.

No trouble I thought my friend and companion  Jenny got the attention of the staff, asked for us to be moved and off we went.

The next seating we were offered would see Fizz sat directly beside the auditorium steps (a major trip hazard)  but as the seating within the venue was fixed in place the staff were a little perplexed.

Another member of staff was called upon and it was decided that a couple of chairs could be brought in from outside and placed by the door……

“Um sorry I am not sitting right beside the door, where people will be coming and going throughout the day, that’s hardly relaxing for Fizz or suitable for me.”

So the chairs were moved and we were seated beside the camera mans tripod.  But that was ok; at this time the meeting was starting and I just wanted to sit down.

So me and Jenny moved the chairs across slightly giving Fizz the space to lay down.  But by this point not only was I feeling anxious and upset, I was also feeling that because our seating was so different to everyone else that I was on show, a bit of a ‘look at our token blind guest’  and this was what ALMOST saw me walk out.

I messaged my teammate and cousin Charlie with a very frank, honest, choice set of words and we simply replied

”Stay put I will sort this”

Charlie is a rock.  Jenny got me a drink and Fizz nudged at me as if to say ‘it’s ok mum’

Charlie sent me a message a few moments later that simply said “it’s sorted” so I sat, listened to the speakers and awaited the break.

At the break we stepped outside and were greeted by the events coordinator who moved me away from the crowds (these events have upwards of 2000 people attend) and explained that there was a larger room just opposite that had the lights up, had tables, plenty of space and a large screen that was streaming the main event directly into the room.

Well considering at similar events I can only just watch the stage via the screens and never actually see the people as they stand on the stage, this sounded like a good solution.

So into the room we went, table found, cool air con and really good lighting and I felt both me and Fizz relax.  Jenny came with me and she instantly agreed that this was a great alternative and would make it easier for her too to write notes and move about. (The room was a large conference hall, with about two dozen large circular tables.

Fizz was aware that I was more relaxed and as such, she was more relaxed.  And thankfully the rest of the day was much calmer.

The events staff came back to find us to discuss the evening dinner and party.  It would be held in the very room we were sitting in, but dressed to celebrate.  There were set to be food stations, where festival themed food would be available.  The event team asked me to just come also for and try to see if I could cope.

Again they made arrangements for me, Fizz and the a guest of my choice to enter the room before it was opened up to everyone.  To enable me to come in while the lights were up to navigate the room.

Fastforward to the evening ……

I entered the room early with Fizz and Jenny, we found a table to sit at and I was able to familiarise myself with the room layout.  The food stations would be far to tempting and distracting for Fizz, so Jenny agreed to support me by collecting food for me.

Entering the room early may not sound like much; but actually it made all the differenxe to enabling me to enjoy the evening.

I felt relaxed; I felt much more relaxed than I have at any other party event I have attended with Herbalife.

I even got up and danced for a bit and found myself mingling through (with a Jenny’s help) to catch up with other friends and colleagues.

Sundays Training was so much simpler.

We went straight into the ‘break out room’ and we actually found a good few more people sat here.  News of the air conditioning had spread through to the auditorium and even some of our own team joined us.

I don’t feel that I missed out by sitting in the other room.  I did however gain so much.  I would highly recommend that such ‘accessible’ seating was available ….. And as such and email has gone off to the company to ensure more support is available.

After all, o can’t be the only person within Herbalife that has a disability or anxieties about large numbers of people?

 

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28 Jun 2018
Blind Blog • Days Out

The day I brought my cane

“Stepping through the door like a troubadour
Whiling just an hour away
Looking at the trees on the roadside
Feeling it’s a holiday
You and I should ride the coast
And wind up in our favourite coats just miles away
Roll a number, write another song
Like Jimmy heard the day he caught the train.”
On this beautiful sunny summers day I couldn’t resist the play on words!
But with this beautiful weather and scorching temperatures come one very sad moment.  And that is that for me to go out during the peak part of the day, my faithful hound Fizz must stay behind.
It isn’t because she is a black dog, it is simply just because she is a dog. And as such can only reduce her body temperature through panting.  She would also be walking bare foot on pavements that have been heated by the sun, which could cause blisters on her paws.
So for me, it is back to my (not so faithful) long cane.  With its red and white strips it was recently likened to a barbershop candy striped cane!!
As a guide dog owner it is important to keep up my cane skills for very such occasions……. But it doesn’t mean that I enjoy this time at all; not one little bit.
Bright sunshine, blue skies and long canes (for me) do not mix well.  I find myself scanning with my residual sight, apologising to shadows and generally find myself more exhausted by the whole experience.
I can’t however cancel all plans and stay home.  I am however limited to how far I can go as Fizz is home I need to ensure I don’t leave her alone too long either.
It is a balancing act and in one way I am grateful that I can still keep my essential independence because of my long cane skills, but in another way I will be much happier when the weather cools a little.
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22 Jun 2018
Blind Blog

My 10 ‘MUST HAVES’

Everyone has their own ‘must haves’ or ‘can’t live without’ items.  And maybe mine aren’t that dissimilar, I have very little specialised kit to cope day-to-day.

In no particular order, here are my 10 MUST HAVES:

  1. One Touch Kettle
  2. iPhone
  3. Apple Watch
  4. Compact Dome magnifier
  5. Wrap-Around Polarised Sun Glasses
  6. Power pack
  7. Amplicomms Amplified Bluetooth Neck-loop
  8. Notepad/Pen
  9. Book
  10. Dog Bowl

ONE:  One Touch Kettle:  I like most can’t start my day without a cuppa.  My cuppa of choice is Herbalife Thermogenic Peach Tea; and although there are fantastic gadgets like liquid level indicators and tipping support for enabling VIs to pour a normal kettle, my kettle isn’t a specialist bit of kit.  It is simply a water saving, energy efficient way of pouring just one cup of water at a time.  I don’t even need to lift it.  I simply set the cup size (all my mugs are large-so this is easy) press the button and when the water has heated, the water is dispensed automatically.  With no risk to me….. This also means it is safe for my children to make them or me a cuppa (although this novelty has really caught on yet!)

TWO:  iPhone:  Apart from the ‘usual’ needs for a smart phone to call, text and access maps; my iPhone is an AMAZING piece of accessible tech.  With the standard, ‘Notes’ ‘camera’ ‘Magnifier’ ‘Siri’ in addition to the ‘added at source accessibility features my phone is fully accessible’.  It is more than ‘just a phone’ it is a Canera, A CCTV Reader, a pocket sized PA, with the addition of recent apps such as ‘See Al’ ‘Big Spender’ ‘Station Master’ I have all the information I could possibly need at my finger tips means that nothing is ever far away.

THREE:  Apple Watch:  Just as my phone my Apple watch is an extension of the support I gain from Mac based products.  And actually my increased feeling of safety that my watch offers me, helps me to feel more confident in my surroundings.  With the use of haptics I can set a route on my phone that then gives instructions through vibrations on my wrist.  I have my watch set to enable me to zoom in on the screen, to read and send messages and even answer calls.  In addition to making contactless payments enabling me to keep my phone and purse both safely kept in my bag.

FOUR:  Compact Dome Magnifier:  This is my bewest piece of ‘kit’ that I actually received from the LVC (low vision clinic) at Moorfields Hospital recently.  It is a small Perspex domed magnifier that gives 2.5 magnification, which in the scheme of things isn’t much, but with a flat base and a domed top it enables the light to be increased and this has just as much importance to me as the magnification.

FIVE:  Wrap-Around Polarised Sun Glasses:  To protect my eyes from bright sunshine and glare. (Non-prescription)

SIX:  Power pack:  So that I always have a back up should I be using a lot of the apps on my phone and therefore depleting battery life.  As my phone running out is so much more than just ‘not being able to make a call’

SEVEN:  Amplicomms Amplified Bluetooth Neck-loop:  THIS IS a specialist piece of kit, this works with my hearing aids to support me.  I can stream calls direct to my ears (which works brilliantly for guiding from the ground when I climb)  I can listen to music or audiobooks (as I previously had done before hearing aids)  I can also use the amplification button on the front to enable me to hear a person stood in front of me in a loud, busy environment.  Or tune into a local ‘loop’ connection what is being said clearer and directly into my ears.

EIGHT: Notepad/Pen:  Because sometimes I like to jot down ideas for blogs or make notes and sometimes I like to not use tech.

NINE:  Book:  Just like the notepad, I like to just do the simple things, to enjoy escaping from the world for a few moments (after all with my magnifier and the right lighting, I can still read)

TEN:  Dog Bowl:  clearly this one isn’t for me, but with my faithful guiding girl I need to ensure that I can meet her needs and ensure that just like me, she is hydrated.

So, these are my lists.  And at times I will add other items to them and other times I may not include them all.  But I do start each day with a cuppa and I never leave home without my phone or watch (which probably isn’t any different to any other person in today’s society)  I am sure if you asked another VI they may have different items they consider important.

I just wanted to share with you mine.

i hope you have enjoyed.

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16 Jun 2018
About Me • Blind Blog

Reflections

Photograph of Tee, Weston a grey t-shirt saying “climb on” stood in front of a black and white canvas of a misty hence in Greenwich Park

Photograph of Tee, Weston a grey t-shirt saying “climb on” stood in front of a black and white canvas of a misty hence in Greenwich ParkThis November it will be 10 years since I was registered SSI (Severly Sight aimpaired aka BLIND) it was the appointment with my consultant that EVERY seemed to change, yet at the very same time NOTHING changed.

What I mean by that is that my eye sight didn’t actually change at THAT appointment.  I  simply became aware of just how bad it was.

Having had my Nystagmus (involuntary eye movements) and having worn pretty strong glasses for as long as I can remember my sight had never been great.  But in terms of the distance I could see (I have always been short sighted) had changed very little.

Rightly or wrongly so; when I was in my early teens I had been discharged from the consultant at the hospital, where I was given into the care of my opticians.  With the strength of my prescription And it was through this team that in July 2008 they used their new camera equipment to try getting a photo of my retina.

My optician wasn’t happy with what she saw, but she couldn’t explain it to me as she explained it could simply be that with my eye movement the photograph wasn’t actually true.  So she referred me to the hospital for a thorough check up.

Having been rushed in as an emergency after the hospital were concerned I had detached my retina (a common issue that if caught early enough can be reversed) I discovered that this was not the case, the registrar discovered I had cataract in both eyes, I will always remember what she said;

With laser treatment we can remove them and that would actually improve your vision.

But as she was simply confirming I hadn’t detracted my retina, she didn’t actually comment on the fact that my retina wasn’t ‘complete’.

So, you can probably understand my total shock when I returned a few weeks later to see the consultant to be given the news of just how bad my sight was.

I did have cataracts (my left eye had been diagnosed when I was 12) But the laser surgery suggested wouldn’t be easy and would have very little affect at this time.  And actually with my retina dying away my sight would actually only get worse.

Many people ask me

How did you not realise you were going blind?

Its simple, the changes in my peripheral were suggested to be something that had been happening steadily for many many years, and as I only likely lost a small amount at a time I didn’t actually realise.

I did notice ‘little’ things after my daughter was born in 2006, like how I was bumping into things, like low level tables or benches.  But I put this down to ‘baby brain’

I had also noticed that it was taking me longer for my eyes to adjust to light changes; like walking indoors after being out in the bright sunshine, but because I had reaction lenses this went in-noticed as an actual change in my sight (as I assumed it was just the glasses)

So…… Reflections.

I have decided I want to celebrate this anniversary.  I want to acknowledge that as me I have changed from the person I was before.  It hasn’t always been happiness and celebrations, but I have tried to embrace my blindness (and now deafness)

It may sound like a cliche

But in these last ten years I have had so many amazing opportunities, so many doors open to me.  I want to move forward with me and celebrating the good seems the best way to do this.  I am human, I can’t be postmitive ALL THE TIME.  But in this instance I want to look for the good, rather than dwell on the bad.

But the question is (and this I hand over to you my readers) ….

How should I celebrate???

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25 May 2018
Blind Blog

Speechless (it doesn’t happen often!)

I umm’d and argh’d About writing this post; then I thought

“This is part of me, I should share it.”

last week I received an email that has taken me completely by surprise.  I have been nominated for an award.

But not just ANY award, this is for The National Diversity Award 2018 in the category of Positive Role Model.

I do not know who nominated me, but it has left me feeling slightly emotional and speechless.

Under the terms of the nomination it is for me to now write a Bio and supply supporting evidence as to why I feel I am deserving of this award.

Yes, I have no trouble talking or writing about myself; but in this way?  I’m not so sure.

But I am of the thinking that if I don’t at least try, then I will be disappointing myself and the person who nominated me.

So I am slowly working through the forms I need to complete.  And am sharing this nomination with you all, in the hope that you too agree with it and wish to vote for me?

All by Friday 1st June 2018.

You can cast your vote here National Diversity Awards 2018

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22 May 2018
Blind Blog • Days Out

Days like today…….

I have a ‘Have Guide Dog, will travel’ attitude to life, today I decided in the sun to visit Winchester (alone) something I don’t think I will be in a hurry to repeat.

The rudeness, the sly comments & general ‘opinions’ that were continually thrust upon me resulted in a very short visit.

I am more than happy to accept and I do understand that not everyone likes dogs, be that an assistance dog or  a pet.

I do understand that in some cultures dogs are not warmly accepted. But today the comments or actions of rudeness did not come from the here.

Today it came from,

A business woman looking down on her phone;

The art student with a VERY LARGE portfolio;

The man in the queue in Starbucks;

The woman behind me in boots who tutted at me when I asked the sales assistant to repeat herself for the 3rd time because I couldn’t hear her;

The van driver who got shirty when I waved him on because I wouldn’t cross in-front of him.

Were it not for the kindness of strangers I would have found myself fighting tears & heading for the nearest taxi.

it was thanks to ….

The window cleaner who moved his ladder so I would walk past;

Theassistant in Starbucks who offered me water for Fizz while pointing out to the rude man that assistance dog or not I had every right to enjoy coffee;

To the sales assistant in boots who guided me to a quieter area so I could hear what she was saying!

I know that I may stand in the wrong queue at times, I know that my guide dog likes to walk by the building line, which means we often walk right in front of the shop doors, I do understand that I take up more width on the pavement as I walk beside my guide, and she can’t tell me to “step in” the way a sighted person would if the path was narrow.

But at what point does vocalising your opinions change this? All it does is demoralises someone who just wants to get on.  And could even stop a (less stubborn) person from going out and visiting other areas.

Today has been one of those days where I have felt isolated and hurt by the actions of others.  But writing this now I am able to say that I won’t let it stop me, I share this with you now to raise awareness.

Because it can often be the ‘off-handed’ comment that you quickly forget making that can cause irreparable damage to someone.  We never know what demons people are fighting; so just be kind.

It really is THAT simple.

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