Tag Archive for Disability

Blind doesn’t mean I can’t see

A blurred image of a woman's eyes and the bridge of her nose.

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A simple cold can bring the world down

It’s early January, the weather has beensuprisingly warm and wet, so having a cold is not something of a shock to me.  Its that time of year, it would be more suprising not to get one.

But this is different, this time this is making it a real struggle to get on…… I have plenty of tissues, Vick’s, hot blackcurrant and black tea to keep me going.

This time, the difference isn’t actually the cold, it is how it has affected my hearing, which in turn has made my world incrediby difficult to navigate within.

And if I am being totally honest, it is scaring the …. out of me.  My hearing is my indeoendance, my hearing is my way of ‘seeing’ the world.  My hearing is my escapism over a coffee, I am not currently able to pick up the conversations of strangers, I am struggling enough to pick up the conversation of anyone I am with!

I am feeling pretty lost.

It’s been a whole year

It’s so weird looking back on the photos of last year…. This day one year ago along with the support of a great friend and the brilliance of my very talented climbing partner, I found myself climbing the equivalent height of The Gherkin, London’s iconic tall building, named so because of its glass uninterrupted shape and dominance in the London skyline.

 

say the equivalent, because the building itself is un-climb able, so at Calshot Climbing centre we relayed between climbing and belaying to climb the 180m each.

We did the challenge to raise money for Hampshire Association for Care of The Blind,ore commonly known as Open Sight. With the final total being over £900.  It was also a major personal challenge for both me and Simon whom I climb with.  For me, because I had never climb this sort of endurance before and for Simon, he undertook the challenge blindfolded.  It was our ‘Blind Climb’

due to life and work commitments, sadly it has been some time since we have been up the wall again…. But we shall return and soon !!

 

 

Statistically I am pretty insignificant

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Sun and Sandals

I can’t be the only person who thinks or worries about this, I am sure that it isn’t just something that fellow friends with a visual impairment can to relate too, but also those with half decent sight.

Here is my dilemma, with the sun, out comes the sunglasses…. No trouble there.  I have been wearing them throughout the winter anyway.  But with the warmer weather, out come the sandals.

And sandals mean just one thing….. Feet on show, more precisely.  Toes !!

I haven’t been able to see my feet for a long time.  I hate people touching my feet, so have never dare asked a friend to help.  Last year I only allowed my toes out in private, but not this year.  This year I want to let the sun kiss them.

So, I have come up with a way that I can give myself a pedicure and possibly even paint my toe nails (should the need arise-not that it has JUST yet)

Maybe it is using a piece of equipmemt designed to help those with sight issues to its extreme, but having recently received a (old to them) CCTV reader from a friend…..

I am now able to see my feet and toes for the first time in a long time, and thanks to my tv.

They are in high definition !!!!

 

 

The Awards

Today is the day when Adrian Chiles, Joey Essex & many more British celebs get to meet with my gorgeous guiding girl Vicky Osborne. Tonight we join other wonderful guide dog partnerships, volunteers and staff to celebrate their achievements. In addition to the achievement that all 45,000 partnerships & 4,000 pups in training will have. To some, “they are just dogs” but to me and other GDO’s they are our independence, our guides, our eyes.

I for one as a VIP, would not even consider the train & tube journey to London today. But as a team, together, me & Vicky will fathom out Victoria station some how. And regardless of the results of tonight’s awards, she is my guiding girl, without whom I wouldn’t be half the gal I am today.

10.39

Warm, almost empty train… And off we go!!!
Whether it is a blind persons thing or any traveller. My bag has been checked, checked and checked again for travel cards, purse, headphones and phone….. Then the case, for dog food, bed, bowl and finally phone charger!

So, one final check for my travel card & off we go…… Eek !!!

12.45

I haven’t travelled to London Victoria train station since I was a very small child, it seems just as big and scary a place now as it did then. I have the time of the next tube to get me to Kings Cross, but as the tubes run every few minutes and I am in now hurry. I set Vicky out to “find coffee”. Where she weaves me through crowds and shoppers to Starbucks. Such a refreshing break and decent coffee to plan how and what to do next.

First order on the agenda, loo for me, grass for Vicky!

Then off to Victoria Underground we go.

With the help of the underground staff and a turned off escalator we made it to our tube and along to Kings Cross.

Vicky was in her element with the crowds, tourists not knowing where they were or where they were going, she guided like a dream.

If only she could read street signs and it would have been an easy trip from the underground to the hotel.

As I have said before, I rely on maps on my phone, 3G signal was good, head phones were in one ear and I was ready to go….. GPS however had other ideas.

London Kings Cross area is surrounded in its fair share of tall buildings. St Pancras International being one, The British Library, then there is the clock tower at Kings Cross, the office buildings, the hotels and the apartments.

It was at this point I discovered that high/tall buildings and GPS don’t mix!

But then, one thing you can be almost certain of in London is a police man or 3… All of whom were willing to walk me the 5 minutes to the hotel. They appeared most put out when I said directions would do! So a quick ruffle of Vicky’s head and off we went.

The directions were spot on, but the guide dog sense was even better…. The arrival of not 1 but 7 guide dog puppies as we were on the approach to the hotel symbolised that we were in the right place, and Miss Vicky’s wage to revert to her (never-forgotten) puppy years was growing by the second.

The hotel was simple, clean and absolutely perfect for a vip like me, no fuss, no frills and no silly unnecessarily placed furniture. We checked in, put the tele on promptly fell asleep !!

Eek….. Waking with just an hour to go before set off for the dinner, I laid out my clothes. Only to discover that I had not packed my tights….. Double eek.

So, on went the harness and off we rushed back down the road to Kings Cross to find a chemist, easy enough surely? Ummm Nope!!

We made it to the chemist, we located the assistant and got the tights. Then upon leaving, the reality of it hit me. The light was going down, I was in London, not entirely sure of which street I had to take for the hotel and I only had 45 minutes to get back, shower and change before te coach left.

This was where Vicky came into her own. She seems to know what I wanted and where it was. So with a great tension on the harness I let her lead the way, through the crowds rushing in and out of the tube station, patiently waiting for the beep of the crossing despite others rushing through the traffic built up. We were off and in less than 8 minutes we were back at the hotel.

Quickest shower, hair dry and dress I have ever performed.

Quick brush of Vicky….. And we were ready !!

The only bonus of this mad panic was that the nerves I had been feeling all day had gone, I didn’t have the time to remember them. Thank goodness!

5.25pm

The coach is heading through bright coloured streets, flashes of Christmas decorations, The London Eye (I overheard someone say behind me say). Then we were at the Hilton. THE HILTON. The Christmas tree in reception was huge, thinking colours and lights. Guests were wandering around. People crowded around people asking for photos and autographs, while I found myself amongst the crowd, feeling the loneliest I have felt in a very long time. Oh, so very very alone.

A member of the guide dog team came into me, introduced themselves and offered me their arm. I was guided to the lift, up several floors and into an area with a coat check. Coat checked in, then the arm was offers again and I was walked into a large ball room, handed a glass of fizz and introduced to people who’s names I didn’t recognise and faces I couldn’t see.

It was a whirlwind of introductions, explanations of why I was there, what type of dog Vicky was and warm wishes of ‘good luck’ before being walked through to the main event. The stage was set with bright white Christmas trees, the room had a blue ice illumination to it and the tables were set with far too much cutlery and a very heavy, thick white table cloth.

The feeling of loneliness and dread filled me again, I felt myself beginning to feel anxious and clammy. That was when I found a trustee for guide dogs by my side pouring me a glass of water and reassuring me that they were there to help, with anything I should need.

I welcomed the water, quenching a thirst I wasn’t even aware of and then he offered to pour me a wine, white or red? Or both? I said I would never be able to see the white, so best make it a red.

And the rest of the evening was a whirlwind of fundraising, silly entertainment, singers and then …. The awards.

The first award was for an individual or group that had supported guide dogs, I don’t remember the name of the award. Because it was the moment I realised that Vicky wasn’t the winner of her category.

How did I know you ask?

It was simple, the winner of the first award had a short video all about what they’d had done.

I hadn’t done any video recordings.

I was gutted, so very very gutted.

The Poster

Gherkin Blind Climb poster

Gherkin Blind Climb poster

Struggling with the change

Last month I got my routine 6 monthly eye test. My prescription has altered, which I knew before going to the opticians. I was struggling to see my phone, without holding it at the end of my nose and looking over the top of my glasses as I could no longer see close-up with them.

The change in my sight wasn’t a big change, but it was a significant one.

The way my eye condition is, with the strength of prescription that I need I can’t have near vision and long vision. I can have ‘reading glasses’ to see things that are close to me, like reading, seeing my children etc. Or I can have distance glasses and be able to watch tv or the kids playing around in the park. But I can’t see anything closer than my arm length away. If I didn’t suffer with LCA or Nystagmus I would be able to wear varifocals. But as I do, I can’t.

With my LCA I am now also unable to adjust easily to different light levels, meaning that I am also unable to adjust between two different prescription glasses, to go from distance to reading lenses.

So I had to make a choice…….

And I chose to see my children, large printed letters and the people that I love. Because on a bright sunny day, I wouldn’t see anyone even with distance lenses!

However, this time at the optician I received the news that I was very close to the limit of what they could do for me with prescription glasses. I am getting to the limit of a difference that having a prescription would make to me.

The other issue I had, is that although my eye’s have only changed ever so slightly in the last six months, it has actually been over two years of ‘ever so slight changes’ since I have been in a position to purchase a new pair of glasses, because before I have even chosen pretty frames, the lenses themselves are in the region of £280 (after allowances)

So, having the money to spend, I bought a new prescription and the frames to sit them in. Two weeks to make them, and additional £100 to reduce the thickness from 9mm to 3mm, I got my new glasses……

And all the ‘slight changes’ have added up to one hell of a dramatic change.

A change that means that on a bright sunny day, I am better protecting my remaining sight with a pair of non-prescription sunglasses than wearing my actual prescription.

My new prescription, although strong for me. Is in-fact the equivalent of a reading glass prescription in the amount of difference that it makes, especially with my distance vision.

So for the first time since I was about 4, I am getting used to not wearing glasses full time. An issue that I am struggling with just a bit.

When I am outside in the glorious sunshine that we are experiencing at the moment, I am comfortable and confident wearing my new sunglasses, but inside is a different story.

At home, right now as I write this I am wearing my glasses, when I at meetings I am wearing my glasses, but when I am in the gym or on the climbing wall, I do not wear my glasses.

And it is not a look or feel that I am getting used to…… Just Yet!

Where would a blindie be without an Iphone?

As my sight has deteriorated, the brightness, font size and contrast have all increased on my phone. Now Siri has become my best friend and now that I have turned on the voice over, my phone is even more accessible than ever.

I have also found the camera to a fabulous addition to my life. It has enabled me to take numerous pictures of my children playing, birds flying, animals on a farm and today a squirrel. I have found that so far in the summer holidays I have taken nearly 100 photos a time when we have been out and about. Not because I am boring everyone on Facebook with what I have been doing. But so that I can see what the children have been doing, for example when they are playing on the swings in the park. Or when they are feeding a goat at the farm. These are just photos for me, many of them get deleted, but it means that I can watch them later or even use the zoom feature to watch them or check on them while they are running around.

Some people curse smart phones and Iphones, but for me having all these features with me enhances my independence not only with my children, but when I am shopping. I used the camera just yesterday to take an image of a shelf price that I couldn’t read. Because with magnification and holding at the right level, I can read it.

I can’t live without mine now. It is a way of communicating with friends and family, my Sat Nav, CCTV, document reader and so much more.

Not such a relaxing coffee

It has taken me some time to sit down and write this post, (nearly 5 months in fact) as it is hard for me to recall the events without sadness and upset, rather than anger and bitterness.

I am a very easy going kinda gal, I do not see myself as someone who carries a chip on my shoulder because I have an eye condition. I also feel that I am open to alternative perceptions and don’t make the automatic assumption that every person that I come into contact with is aware of sight loss or how to interact with a guide dog. After all, why would they?

I have been into places where the staff or members of the public are not aware of the regulations regarding a guide dog, I am more than happy in such situations to calmly and politely explain the law regarding working dogs.

Just because a member of staff is unaware of the regulations is not their fault, the staff in question are usually very willing to listen to my explanation and then help me with my requirements.

There have been occasions where staff are not aware of the regulations and are not prepared to listen, in these instances (thankfully few and far between) I make contact with my local guide dog office, who are more than happy to contact the staff and explain things to them.

However, the incident in question was not one of lack of awareness, it was one of personal attitude coming forward into a professional role. Something that having worked within retail for most of my career is a major ‘no no’

And for that reason, I hope that you understand why this has caused me such upset.

Having spent the morning doing some shopping in my local town, both me and the pooch were tired out and in need of refreshment. So I stopped at a coffee shop, where I could feed my caffeine addiction and allow my guide dog to rest her paws with a nice bowl of water.

Upon entering the cafe, a member of staff approached me and showed me to a table right by the door. I thought nothing of this as the interior of the cafe was quite dark in comparison to the bright sunshine of outside, so it gave me time to settle myslef and allow my eye’s to adjust to the difference in light levels.

Although a bright day, it was very chilly and on removing my coat I realised that the table was in a direct draught from the door, so having adjusted to the light levels I got up to move to a table further within the cafe, as there were several empty tables dotted around.

On moving to a different table, a member of staff came upto me and told me to stay where he had seated me and he would come to me, so I explained that I was moving out of the draught. This was when the ‘politeness’ ended.

He said that I needed to sit where he had put me because of my dog, so I calmly explained that she was a working dong and allowed. I explained that I didn’t wish to sit in the draught, so he said that I could sit at a table at the very back of the cafe. When I asked him why I couldn’t sit at the table I thought was more than suitable, as it had ample room underneath for my guide dog. The member of staff then explained that he did not want my dog to bite or upset the other customers.

Again, calmly I explained that she was a working dog and as such would sit quietly under the table away from anyone else.

That was when the member of staff told me that he was aware of the rules regarding “my dog” but if I wanted to be in the cafe then I would sit where he put me.

At this point, I was struggling to contain my upset and explained that I would not be placed where he saw fit, I explained that as a visually impaired person, my guide dog was my mobility aid and that I felt that he was discriminating against me because of her. He told me that me insisting on having my dog in the cafe was causing great upset to the other customers, who he felt would leave were I to stay and continue to cause a ‘scene’.

I informed him that because of his attitude I would not be staying in the cafe and that he had lost potential business. I bit back the tears as I spoke. As I felt humiliated and forced to leave through no fault of my own.

At this point a man who had witnessed the events stood up and offered to take me to the near by Costa, as he and his family were disgusted by the way in which I had been treated and would no longer stay in the cafe.

I had heard several other murmurs as I was leaving. I did not take the man and his family up on their offer, I just wanted to get away. So I walked for a little while before contacting my local guide dog team and explaining the situation to them.

The member of staff I spoke with in the office was very kind and understood my upset and was able to understand what I was saying despite my sobs on the telephone. She assured me that she would pass the matter on to the public relations officer and that she would be in contact with me.

My local guide dog team were fabulous and got in contact with the cafe in question straight away, but not before they had received two further phone calls by concerned members of the public that had witnessed my ordeal.

After writing a very strong worded letter, the guide dog team received no reply or comment from the cafe.

It was over a month later when two friends, along with their guide dogs went into the cafe for a spot of lunch, that they were privy to wonderful service and staff that were more than helpful to each of their needs.

So, I took it that the cafe or in particular the member of staff that I had encountered had learnt from the letter they had received. That I bit the bullet and went back in, this time I couldn’t face going alone, so took a friend and my son.

The service was fabulous, but I could not relax, I found myself listening to each of the staff members to hear if I could recognise the member of staff that I had previously had the misfortune of speaking with.

I was not relaxed, nor did I feel that I was being fair on my son or friend as I was ‘on edge’ so we drank our drinks and left.

I do not feel that I will be able to return to the cafe in question again.

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