Tag Archive for Depression

Perfect vision …. If only in hindsight.

Isn’t it crazy how even to someone with poor eye sight, hindsight has perfect vision?

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Creative SparKs are Flying

Although I am only just writing about this, the things I am about to share with you actually started just over 18 months ago.  But it has taken this time to get the project to where it needs to be.

A friend of mine is a magician, children’s’ entertainer and balloon artist.  A role that he has played out for many years before I even knew him.  Many of his clients and party gig’s he got through word of mouth and his website and business card.  Both of which he admitted didn’t show his true personality.

He is known in the business as sparkey…..  A play on his main profession and surname, but with no definition between the two parts.

He mentioned that he was trying to redesign his image and website, to enable him to move forward in his role.  This is where my creative brain kicked in  And I asked him if he would mind me having a play around with his ideas.

So, I started with my brief and his name….. And off I went.

First things first, his name….. I wasn’t going to change it, but I did ‘alter’ it a bit.

So sparkey became SparKey.

And the fun really started to begin.

I am not going to bore you all with the sleepless nights and crazy ideas that flowed (due to me suffering with insomnia, not due to the stress of the brief!)  But I took the initial idea of a ‘burnt out clown’ and gave him The SparKey personality.

 

The brief was to work in fun, laughter, magic and balloon modelling into a single character.  The balloon magic was a challenge, although it didn’t need to have been, I was missing one key feature of the package.  SparKey always made and wore a 3 coloured balloon made top-hat.

The magic was simple with a traditional black and white magic wand.

The fun came in the form of 3 iconic metallic green juggling clubs that SparKey used within many of his shows from the very beginning.

The fun, from his oversized green and blue clown shoes.

But how to portray the laughter?

That took more work, that took many a drawing being scrunched up on the kitchen floor, over flowing the waste paper basket at the kitchen table.  It turned me into, what to appear to others, unaware of the project….. A First Class Stalker.

Several hundred photographs, videos and observations of the man behind SparKey.

As the time went on, my sight went away.  Graphics was part of my degree, part of my soul and a brief like this wouldn’t have taken me a quarter of the time before.  This with it, bought its own demons, its own dark moments and at the same time, its own moments of creativity that may not have come, had the brief been completed in a quicker time.

One part of the design was really challenging, it was the key to bringing the whole design and character together.  It was the laughter, the smile, the energy that came through from the man behind the costume that was SparKey.

At one point, I struggled to distinguish shadows and laughter lines on his face, so I even spent time, feeling his face.  Touching his mouth and sketching as I felt the ever so slight small lines that made the smile.  The smile that made SparKey the character come to life and also the smile, that on many a draft occasion made the character look more like a psychopath than a childrens’ entertainer!

Tweaks and re-draws filled yet more waste paper baskets.  Colours and rendering took time.  Then, just before Christmas 2013 SparKey was born, he wasn’t perfect…. But that was part of his charm, part of his fun and part of the cheeky personality of the man that lay behind the image.

The man that is Simon Key. A.K.A SparKey.

 

Sparkey-Vector-1000X1233

 

Then came the colour and the logo to match.

 

Sparkey-Vector-ColourSparkey-Worded-Logo

 

All in all not bad for a VIP like me !!!

The images above are the ‘computer tweaked’ images of my hand drawings. That have now been formed to make SparKey’s business cards and website. A website that you can find at www.thesparkeyshow.co.uk

 

(copyright 2014)

Fabulous Five Years

An image of Tee and Vicky (Tees Guide Dog)

Today marks Five Fabulous Years since I was signed off as having qualified with Vicky, my guide dog.  In that time, she has given me so very much, at a time of sadness, sorrow and increasing darkness, she has given me love, support, companionship and above all else….. Independance.

Without her guid are readding ing me, protecting me, showing me the way, I honestly feel that the darkness would have taken over, and it is propable that I may not even be here today to tell you these tales.

I know you, you are reading this thinking “she has sightloss, its not terminal.”  Which yes is true, but with my sightloss, came depression.  And if not treated, it can become all consuming and that can be a terminal illness.

I’m not here to talk of that though, I am here to talk about how much I have gotten from my gorgeous guiding girl.

She is a dog, YES.  But actually, she is a walking, breathing, living mobility aid.

Without her by my side, I wouldn’t be leaving the house.  I wuldn’t be able to take the kids to the park, I most deinately wouldn’t be contemplating returning to Uni next year.

As my guideing star, a friend has nominated Vicky for an award with Guide Dogs.  She is in the final 3 for the ‘life changing award’ to be decided at the annal Guide Dog Gala Dinner, to be held in December in London.

Me and Vicky have been invited to the awards ceremony, which if she wins her catagory, she will also be put forward to be crowed as Guide Dog of the Year.

I am very excited, to win this award wold be fabulous recognition of all that she has done for me.  I already know all of this, so if the judges don’t pick her, it won’t change my ove for her and my appreciation for having her by my side for the past five years.

The Struggle is easing, just a wee bit

So, having bad enough eyes that glasses no longer help other than when I am doing super close up work or reading is taking a lot of getting used to.

I can now leave the house without feeling that I am naked, after all I have been wearing glasses for the last 30 years, so they are kinda a big part of me.

This year though with the fabulous bright summer days I wasn’t actually leaving the house without glasses on, because for the first time I was wearing sunglasses, really nice wrap around sunglasses by Trespass, not fancy in anyway, but very comfortable.  In fact, I have been wearing my sunglasses this week as between the rain showers the sun has been blaring through the clouds.

It is interesting to ‘see’ (excuse the pun) how people treat me differently.  I haven’t been asked if I am a guide dog trainer once!  I have been offered more assistance than ever before and God knows I have needed it!

I have felt more vulnerable than ever, not even being able to see my friend that I know who is stood directly beside me.  I haven’t coped so well with dealing with the frustration that this has caused me.

 

My shopping habits have changed, I am no longer a bargain hunter in stores, nor have I bought any new clothes, it is so hard now. Much more harder than I imagined it would be.

More than I am happy to admit right now.

 

 

Struggling with the change

Last month I got my routine 6 monthly eye test. My prescription has altered, which I knew before going to the opticians. I was struggling to see my phone, without holding it at the end of my nose and looking over the top of my glasses as I could no longer see close-up with them.

The change in my sight wasn’t a big change, but it was a significant one.

The way my eye condition is, with the strength of prescription that I need I can’t have near vision and long vision. I can have ‘reading glasses’ to see things that are close to me, like reading, seeing my children etc. Or I can have distance glasses and be able to watch tv or the kids playing around in the park. But I can’t see anything closer than my arm length away. If I didn’t suffer with LCA or Nystagmus I would be able to wear varifocals. But as I do, I can’t.

With my LCA I am now also unable to adjust easily to different light levels, meaning that I am also unable to adjust between two different prescription glasses, to go from distance to reading lenses.

So I had to make a choice…….

And I chose to see my children, large printed letters and the people that I love. Because on a bright sunny day, I wouldn’t see anyone even with distance lenses!

However, this time at the optician I received the news that I was very close to the limit of what they could do for me with prescription glasses. I am getting to the limit of a difference that having a prescription would make to me.

The other issue I had, is that although my eye’s have only changed ever so slightly in the last six months, it has actually been over two years of ‘ever so slight changes’ since I have been in a position to purchase a new pair of glasses, because before I have even chosen pretty frames, the lenses themselves are in the region of £280 (after allowances)

So, having the money to spend, I bought a new prescription and the frames to sit them in. Two weeks to make them, and additional £100 to reduce the thickness from 9mm to 3mm, I got my new glasses……

And all the ‘slight changes’ have added up to one hell of a dramatic change.

A change that means that on a bright sunny day, I am better protecting my remaining sight with a pair of non-prescription sunglasses than wearing my actual prescription.

My new prescription, although strong for me. Is in-fact the equivalent of a reading glass prescription in the amount of difference that it makes, especially with my distance vision.

So for the first time since I was about 4, I am getting used to not wearing glasses full time. An issue that I am struggling with just a bit.

When I am outside in the glorious sunshine that we are experiencing at the moment, I am comfortable and confident wearing my new sunglasses, but inside is a different story.

At home, right now as I write this I am wearing my glasses, when I at meetings I am wearing my glasses, but when I am in the gym or on the climbing wall, I do not wear my glasses.

And it is not a look or feel that I am getting used to…… Just Yet!

Insight in to the future – I didn’t like it

Yesterday morning I ran out of hayfever tablets, and it wasn’t until getting ready to go to bed after my eyes had felt ‘scratchy’ all evening that I remembered. But within few short minutes it was too late.

The damage was done and there was absolutely nothing I could do.

My eyes started to weep a sticky kind of tear, my eye lids swelled and involuntarily my eyes were closed.

Painfully so, too the point that I had to physically pull them open to try to put drops in, but the pain was so great I gave up on that idea.

All of this is down to my hay-fever, not my eye condition. So I wasn’t overly concerned.

But I wasn’t prepared for what happened and how what followed made me feel.

Not being able to put the eye drops in, the only other option was sleep or try too.

But to get to bed, I first had to turn off the lights and ‘close-up’ the house for the night.

I can and often do walk around my house without the lights on and I know where everything is … Well, maybe apart from the odd toy, or worse a large dog smoked bone !!

But, this was very different.

If I close my eyes when all the lights are on, I can still see the brightness from the lights through my eyelids.

And this was exactly what it was like last night, only because of the swelling and pain, I couldn’t just open my eyes a see the shapes of the lights.

This brightness was very uncomfortable, and more upsetting than I though possible.

Walking around the house turning off the lights was something that physically I could do, but emotionally it was heart breaking.

It wasn’t until the house was in complete darkness that I was able to feel calm again.

There is likely to come a time in the not so distant future when all that I will be able to see is light from dark, with possible shadowing.

Lastnight was an insight (pun intended) to what that world will feel like.

And I don’t think it is ever a world that I will he ready for.

Although registered as severely sight impaired, which many class as ‘blind’ (even in the medical world) I can still see, all be it small amounts in little detail, this is enough, my brain and memory can fill in the rest.

How will my memory cope with filling in the rest when all I can see is light and dark?

How will I tell that my children are amiling if I can only see their shadows?

Will I ever be able to cope with the fact that my sight is ever diminishing?

Or understanding how I will fit in an ever shrinking world?

Any ideas would be grateful received.

Thank you.

A Gem Lettuce of a Find

As A woman who has suffered from my ‘over-indulgences’ with food, I am tackling my life with a healthy eating attitude to food in addition to getting fitter. Like many who have suffered with depression, I let myself go and used ‘rubbish food’ as my crutch to make me happy…… And guess what? It didn’t work!

Anyway, now I am an active member of my local Slimming World group. With a fabulous consultant in Liz, who is herself on the slimming world journey. She has great snippets of information and ideas to help us all alone.

A few weeks ago, whilst in group, we were talking about how time consuming it is to make and prepare home-made chips. A member in the group admitted that she didn’t have the time for the ‘faffing about’, this was when Liz told us of a local greengrocers that sold pre-cut potatoes for chips.

As a VIP, it has been a very long time since I have had proper ‘home-made’ chips, as although I can peel a potato, slicing it for chips is far beyond me, without the risk if injury that is!!

So, off I went to a nearby Stubbington village to The Fruit Basket…..

WOW! it was a beautifully laid out store, clearly arranged by fruit, core veg, salad, root veg and a lovely selection of miniature veg. Then there was the fridge with the milk and next to that the largest selection of ‘fresh’ pre-prepared fruit and veg.

Not like the bags in the supermarkets, but simply washed, peeled and cut assortments of goodies.

Unfortunately, no pre-cut potatoes for chips.

They did have, peeled and cut potatoes, onions, (which I haven’t cooked with in years) carrots, squash and swede to name just a few of the bit I picked up. And at very reasonable prices with an offer of 4 bags for the price of 3 I was sold.

This in addition to fruit I had picked up, which I must say is still fresh over 2 weeks later (unlike my last fruit/veg shop from the supermarket)

I was a very happy bunny, with a large bag of fresh, healthy foods. That when I got home, I felt it was only right for me to contact the company to tell them how helpful I had found them.

They have 2 shops in my local area and their warehouse is based within Gosport where they supply many local restaurants and catering companies…. Which I why they are able to offer the freshly prepared fruit and veg within their shops to the general public.

So off went my email, I commented on how accessible the pre-prepared range was to me and would enable me to be more independent with my cooking and more adventurous with what I ate (to be honest if I couldn’t cut it or de-seed it easily, I often wouldn’t bother.) I also mentioned about the chips, especially as my Slimming World consultant had mentioned it to a room full of about 45 men and women.

This was the reply I got…….

Hi Theresa,
Thank you for your email.
Glad to hear our prep fruit & veg is useful to you.
We stopped selling the chips due to lack of demand, but we would love to give them another go and see if there is any improvement.
Our prep team will start preparing them in the next few days, so hopefully you will see them in the shop by the end of the week!
Many thanks
Jenni

And true to their word, I went back on Monday this week and there they were….. Bags of big chunky chips.

All I did was par-boil them, then popped them in the oven with a light coating of ‘fry-light’ and salt……. They were delicious and went down a treat with the kids too (which is always a bonus!)

The Fruit basket will be my regular stop for my fruit and veg needs, you get what you pay for and in saying that, as I have actually found them better value for money than my local supermarket.

My personal journey that was the Great South Run

Having said I would update you on the training and how I was getting on, I let the side down. This wasn’t that the training wasn’t happening, it was just that life got in the way of me writing my blog.

So Sunday 27th came and so did the severe weather warnings!

I have to admit that throughout the training it was the rain I was worried about, not the wind. A very foolish misconception, after all the last 2 Miles of the race where along the sea front at Southsea, with no shelter. And as you will be aware if you have been anywhere near the great outdoors on that day, it was windy…. Very windy.

After an issue with my guide runner, the dog costume for the guide runner and everything coming together at the 11th hour I didn’t have the chance to be nervous about anything other than being able to finish the race.

My original guide runner was too tall for me, making him too fast in stride even at his walk pace. So, thankfully I was able to twist the arm of a friend, to join me. As a former partner, he is aware of my eye condition and my preferred way of being guided and having things explained to me. He also had a good understanding of what it meant to me to be doing such a challenge. Although I don’t think he had a full appreciation for what doing a 10 mile flat open air course would be like with a giant dog suit on!

The dog suit was another issue, the events team at guide dogs was arranging for me to have one of their costumes as the one that I had used from my local Southampton mobility team was already being used by someone else. With just 10 days to go before the race it arrived, a dog costume that looked nothing like the fat little puppy I had borrowed from Southampton, it was a very sad looking dog, with several sewing issues.

So, I went back to Southampton and asked for their help, the fundraising team were fab, they tracked me down a puppy costume that was in good condition, although missing its hand gloves, they arranged for it to be driven down from its home in Leamington and it arrived on the Thursday before the race.

It was a fat chocolate lab puppy costume, that with a guide dog race vest on looked the part. My guide would be able to play the role of being my dog after all.

top dog

top dog

So, it was all in place and race day came. On recommendation and for ease we travelled over to Portsmouth on the Gosport Ferry, and then walked the 2 miles to the charity village for a warm up before starting in the ‘green’ heat at 11.05.

It was only once arriving on site and getting the puppy ready, putting my own cane away that the emotion of the day hit.

And oh yes, it hit…. I was in an absolute panic. Not about running the race, not about even completing the race. No, it was something that unless you have trouble with large groups or very little vision will be hard for me to explain in a way that is easily understood.

The volume of people, more that 2500 of them were also taking part, yes we were ranked in different colours depending on ability, the green rank that I was in was the busiest and saved for the casual runners, walkers and those who had never done such an event before.

I was attached by an elastic strap on my wrist to the puppies wrist and when we had trained I had done so to hold his arm between his elbow and wrist. We had trained to work at a good pace together, none of this was of concern, this I had prepared for, trained for and had control over. All the other runners though, well they were a completely different story, over them I had no control, no understanding and nor did they of me.

In such a vast crowd no-one realised that I had a visual impairment or that the dog was my guide, not just a guy dressed up for the fun of it.

So we warmed up together, moved up to the start line together and then it all started, no more time for panic, no more time to think, just time to put my complete and utter faith in my dog.

But in a way that I had never put my faith in Vicky before, I couldn’t not do it now, there were several hundred people behind us, to the sides of us and in front of us and there we were, 2 people with no where to go but forward.

My senses were on ultra high, I could sense all of the people around us, especially those behind us, but I couldn’t judge their speed or distance and with a giant puppy head, vocal commands from my guide were non existant, instead it was all done through feel, touch and gentle gestures…. That we hadn’t practiced or used before. Where he went, I did, I gave up on trying to look forward, the movement of me and others was too hard to focus on, so I put my head down and watched his giant brown puppy paws instead and followed their rhythm.

We had trained together, to run together, but like I said, nothing prepared me for this. I felt like I was a failure, another thing that I couldn’t do, but then there were the people cheering and David attached to me and I WAS DOING IT, even if I had had to walk the whole course, I would have still have done it.

The race really knocked me down, yes I should of trained more, then maybe I wouldn’t have hurt so much after, but no amount of physical fitness prepared me for the emotion and the me part of the day.

I am struggling to explain this, but it was a very large marker for me, on how I do see things differently and how I feel about them. I have never and will not shy away from doing things like this again, in fact I am already thinking of next years challenge. Which not be a running event that is for sure!

I suppose that the reality that I was only able to do such an event by being with another person, not being able to just jog through the crowds and run my own race, I had to do it with a guide. A guide who was very happy to help and happy to go with my pace without complaint. But nether the less, a guide.

The great south run for me was another realisation that I can’t just get up and do things by myself, I am different and in this instance that has caused me upset.

Its been one of the highest moments for me to say YES I DID IT, but a low also to think that I wouldn’t be able to do it alone.

Employment and support allowance

Having suffered with my employer and my depression caused by my continued battle with getting to grips with my deteriorating eye condition and having to learn to use a new form of accessible software that I didn’t feel ready for, I had been on long term sick leave since October 2012. In February this year, after a lot of thinking, adjustments and not very successful adjustments, I was let go from my position on medical grounds.

This did not in fact cause me any great upset, as I had come to the conclusion that my current role was not the one for me.

It was the thought of accepting my eye condition and applying for the government benefit, for people like me who are unable to work…. Employment and Support allowance, often referred to as ESA. Read more

It sounded so simple…. Then you put me in the mix!

As well as blogging I keep up to date with friends and family via my Facebook account, the other day after what had started out as a fun conversation I put myself on the line and admitted to having been forced to admit that I had a limitation.

Yes…. I hear you all say, everyone does.  But this limitation wasn’t even something I had ever considered before, or even wanted to do.  And in the grand scheme of life is very unimportant and changes nothing.  But I started to bother me.

I thought the easiest way for you to see what I am talking about is to copy the post in below, including the comments.  As to protect the identity of my friends I have re-written the post and named them F1, F2 etc, etc.

I would be interested to follow on this conversation further, so feel free to comment yourself underneath on here.

THE STATUS:    An honest conversation with a trusted friend has made me realise that with my sight, there are some things I just won’t ever do….. Some I can get around, fudge through in a different way with help & support.  But today the realisation that there is something I won’t ever do, silly thing is that its only a small thing too…. But feeling 🙁

 

ME:  And it wasn’t even anything I though would bother me, it’s the realisation of limitation not the thing I can’t do.  Even my stubborn streak won’t get me through this one.

F1:  You will get through it hun!  Been there – spend some time wallowing in self pity and then equally important pick yourself up and get on with what you CAN do!

ME:  I know-its the kids, home, college, work is all that matters, but it’t limitations of not being able to do something so very simple for others——-even a small child can do it!

F1:  Yep!  Let yourself spend some time feeling sad, don’t try and ignore it.  Have a bath, get in you pj’s and bring out the chocolate!

F2:  If you don’t mind me asking, what is it?

ME:  Its very silly and ridiculous…….. Juggling!!!    Having looked after Miss Key the other evening while Mst Key & Simon Key did a juggling with scouts.  Mst Key came back telling how great it was & how his dad could teach anyone to do it, it never interested me, bit it set the challenge & the thinking cogs working.  So had a good talk about it & the answer was NO… I need to be able to follow the movement, although I do have some vision.  I have no ability to judge distance or quick movement.

Its not the juggling that is the issue, its the fact that it points out a limitation.  For example, I am not allowed to drive a car (legally) & have a driving license.  But  I can physically drive a car, on private property with the right support.  I know how to do it & can do it.  Its a silly thing, but its these little bits for me that stand out as a limitation.  That having discussed the options of making it accessible isn’t there, if I wish I could play blind football, blind cricket, if I so desired, silly isn’t it?

F2:  I don’t see why you can’t try??  Think of how much fun it would be.  Just make sure you use soft balls so not to knock anyone out though! 🙂  Nothing is impossible, we place on ourselves our own limitations so if you say you can’t then you won’t, if you say to hell with it I am going to have a go…. then you have got nothing to lose and if you prove yourself right they you can say hell at least I tried!!

F3:  I think the thing is that you have to have a base to start with.  If you know that it is something that might be nearly impossible to do before you start, then if you still want to try then you don’t set your hopes up too high.  The bonus is that i you did achieve it then it would make it all the more special. let me have a think, I’m sure Mst Key is right.  He tells me enough that he is 🙂

F2:  Nearly impossible! See not impossible at all 🙂

F3:  just have to be realistic.  Thats all I’m saying, what the hell, I have been learning 5 for 6 years !!!!

F2:  There is being realistic though and shattering poor Theresa’s juggling dreams.  I anyone can you can Mr Key 🙂 xx

ME:  Oh dear, what have I started?  It’s not the juggling that is the point here.

F3:  Well it kind of is and isn’t.  I think the point is that you wont know what you can and can’t do till you try……

F2:  Excellent!  I look forward to hearing your juggling tales Theresa and Mr Key.

ME:  It’s got taken all out of context, I don’t really want to juggle.  I hate the word ‘Can’t’ I know what you meant when you explained it, no it’s not impossible, bit it just highlights the fact that I can’t just grab a set of balls & get going.  You said yourself that you need to think about how!  It’s something highly skilled when you get to your level, but at the same time it’s very basic and simple at the start point.  And I can’t just get on and have a go.  This sees me start thinking & analysing other things I can do or can’t do & the spiral starts & thats why it was never about the actually juggling… Hence why I never put it in the start of this post!  I appreciate the support & kind words from you all.  I’m not as has been suggested (by pm) fishing for sympathy or compliments on what I can do or try.  I wrote this because it was how I was feeling & at that very same moment on looking at Facebook it just felt right to put into words, stop it just being in my head & driving me even more crazy!

F3:  Nope no taking it back now lol.

F2:  Nope, you can’t back out now.  Learn to juggle woman then you can pass your juggling wisdom to me 🙂

_____________________________________________________________

It makes for this being a rather long blog, but I hope it gives you an idea of my thoughts.  Juggling isn’t the issue for me, its not even something like I said earlier that is of great interest.  It merely highlights that for me to do some things, I need to set myself up in a very different way than others.  Have to alter the way in which I do things.  My friends were being helpful with their comments, I am always open to constructive criticism.

I grew up not seeing myself differently to others, but now I do…… I feel so very different.

And this is the point.

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