Archive for Blind Blog

Blindly following Google

When your climbing partner in crime suggest meeting him from work for an evening of climbing, what is a gal to do?

Other than to find out where the closest coffee shop is, and how you can get to it. As it would be an evening of climbing, the ‘have dog will travel’ attitude was altered to ‘have cane will travel’.

Train journey, easy, no problem.

Bus journey, not so easy, but still no problem.

Hedge End (where the CPiC works) has a tiny train station, yet within a short distance there are mammoth superstores of every possible concept. While other coffee places are available, I set my sights on hitting Starbucks, mainly because it has a simple pull up and park location right next to the motorway junction in the direction of Calshot.

Which in fact meant that it had a ‘quirky’ navigation on Google Maps.

The bus stop is placed directly outside the station, the bus was scheduled to tie in with the train arriving. Pure brilliance!

The bus however did not have an audio-visual display. It did have an incredibly friendly and happy to help driver, who ensured me he would notify me of my stop.

So off we went……. And sure enough, the driver true to his word, told me when we had arrived at my stop, he even explained the direction I needed to walk to arrive at Marks and Spencer’s (the major store that afforded its own bus stop!). He also waited until he had ensured I was walking in the right direction before continuing with his journey.

Only; I didn’t want to go the Marks and Spencer’s. I wanted Starbucks. Which as the crow flies is directly opposite Marks and Spencer’s (near enough) Simple enough? the only issue was the great big MASSIVE road known as Charles Watts Way – A334.

And this is where I put my faith in my iPhone and Googled my way!

The directions weren’t straight forward, which made me believe that Google was aware of the size of the road and was walking me a safer way, after all how could it possible take 7 minutes to walk such a short distance (when equating walking time, it doesn’t allow for traffic, as it would if you were driving)

So, ironically. I blindly followed its route……

….. A route that saw me walk through Marks and Spencer’s and out the other side, around the outside of Sainsburys and behind it where a worker was having a sneaky cigarette.

Still my map told me to continue, so onward I went. (I must admit, had it not been a bright afternoon, I may have had other thoughts)

Across a short path and …….. BINGO……

I had found it. The reason why Google maps was telling me it was 7 minutes.

Because in front of me was a rusty cream rail, a thin metal grate on the floor and the key to crossing Charles Watts Way.

It was the ramp, that twisted around in a loose corkscrew before evolving into a long straight path with a slight gradient for several steps, before flattening out and then rising again. It was a bridge.

In the warm sun, the shadows create by the overhanging trees made it hard to make out just how simple and easy it was to navigate.

It was a time to put my trust into my cane, because with the light; the shadows cast and the uncertainty of where I was, I felt apprehensive. I needn’t have; it really was as smooth and easy as I explained it to be.

And before I knew it, I was walking across the top of the bridge, right above all the traffic queuing beneath me. And then I was back into the shadows and the long straight declining path. Turning just once, 180 degrees to walk a similar distance again before coming to a small offset railings, a quick weave and I was on the path beside that very same traffic that I had just walked over. (I didn’t hear it moving!)

A short distance ahead and I could feel the path changing, this time it was much smoother, yet paved, not tarmac as it had previously been. I couldn’t home in on much, because although the trees were cut back, their shadows were replaced by bright glaring sun.

Faithful cane soon told me I was reaching a curb edge, the tactile paving soon enabled me to place myself in the right direction, a small road across the car park and low and behold…….

 

…………Starbucks.

Fearful times

Last year I was very lucky to be able to attend several gigs, and pretty gigs at that; with Adele, Muse, Red Hot Chilli Peppers and even Placebo.  All of these took place in London, a capital known for its security and safety record.

Several weeks ago, a terrorist targeted a Manchester gig.  Men, women and even children were caught up in this horrid act that resulted in 22 deaths and many many more suffering.

I am not here to talk about the attack, nor the group behind it, this is not a political post…… I am going to talk about the fear that this has left me with.

I am in fear of this happening at a gig I go to.

I am in fear of putting my friends in danger, because of the additional support they afford me.

I am in fear or letting this fear stop me.

Followng on from the Manchester attack, London saw a savage attack just last weekend.  Where a van, usually placed on any street in the country was used to mount the curb and drive into Londoners who had been out enjoying a Saturday evening.

My next gig is in London in just a few weeks.  It’s on a Saturday.  It’s also at venue I have never been before.  By the nature of a gig, one especially that is SOLD OUT.  There will be an increase security presents to enable ease of movement for gig goers arriving and leaving, especially with additional support in the nearby tube and railway stations.  I am also aware that many concrete barriers have been erected around London at key locations, such as The Bridges that cross The Thames to make it more difficult for a vehicle to be used as a terror weapon.

In wake of the terror attacks, plenty of advice has been given on RUN. HIDE. TELL.  This is the bit I fear.  What saved many people in both of these attacks was the ability for them to see the danger, see an escape route and to see those who needed help.

So, how do I cope in such a situation without the ability to see?

I can run, and especially if it were needed I would do this, but which way do I run?  The fear in all of this isn’t for me.  The fear in all of this is for my guiding girl Fizz and my friends.

I know that they would never leave me, but what if by helping me they are put into the way of danger?

What if me being with a guide dog appears as an easy target?

All these questions and fears are building up.

I don’t think I would ever have the answers, but in writing my blog I hope to ease my own fears and ease the fears of those around me.

Not even a trained firearms officer can say how they will cope or how they would deal with being involved in such an attack.  As no amount of training can say how you would deal with human nature and the flight or flee reaction.

My friends will walk with me and support me in the same way that they have in the past.  My vulnerability will also stand out to our police men and women and other security forces.

Some of my fellow friends with both hearing and visual impairments have said that they have felt additional support has been afforded to them especially in London since the weekend.

I am not going to make this blog about the terrorist that committed these crimes.  Because after all the whole reasoning for many acts of terrorism is to divide and terrorise people.  And iconically both Manchester and London have actually ‘come together’ supported each other and shown just how great they are as a whole at supporting those who need the support.

So, I have told you my fears, I have explained them, I am not able to completely dismiss them, but I am able to understand them.  I am able to know that they will not stop me from going to London, or any other city for that matter.

I may just make sure more so than usual that my phone is charged and my additional battery pack is also charged.

 

This is a WHOLE other challenge (Pretty awesome though)

So, in recent months I have conquered a Cheese-grater, climber my arse off and began to face many of my demons.  But none of these, or even all the climbing competitions I took part in last year compared to this mornings events.

Having told you all about my change of volunteer role in Scouting I did what anyone would do; in preparation for an upcoming weekend.

I bought a tent!

I had previously gone to a large outdoors shop with a friend and had a good look at all they had on show, I fell in love with a canvas Tippee.  However at just under £800 it wasn’t going to be for me at the moment.  I was able to walk among various sizes and layouts.  But as with everything, budget was my biggest factor.

I had a check list:

  1.  To have a separate bedroom area.
  2.  To be able to stand up in (although a little crouched was ok)
  3.  Have windows.
  4.  Have a black out bedroom area.

And with all this, and the wise words of a good friend who had bought many a tent.  I bought one I felt fit the bill.

I bought a Vango Beta 450 XL in blue.

It arrived yesterday, sat in its box and making me itch with excitement.  The rational in me thought I should wait until I had a friend over to help me, however the ‘kid in a candy store’ won out.

And I set about putting it up!

After all, it had an assembly guide of 15 minutes.  How difficult could it REALLY be?

Well………..

For a start, it took AN HOUR.

Oh and it was a tad bigger than my garden.

Also, with my garden being totally laid in patio, I wasn’t able to fully ‘pitch’ it.  Although with a helping hand of my garden furniture and a few plant pots, I got pretty close!

I had watchful eyes in both Vicky and Fizz who seemed quite amused at times by my antics.  They both had a thorough explore of it; both in its flat form and in its ‘pitched’ form.

I photographed my progress just for you.

Image shows ground sheet laid out on garden patio

In the beginning there was just a ground sheet and a flat tent.

Image of the outer tent laid out flat on the patio ready to assemble

And the instruction…..

3 poles, colour coded for ease with 1 pole longer than the other 2.

3 poles …. Check

colohr coded ….. check; if you count 2 being totally black and 1 having a grey section amongst the black colour?

1 longer than the other 2 …. Ummmm. Nope! 1 shorter (grey section) than the other 2 (totally black)

Maybe I should have stopped at that point.  But given it was all out of the bag, no harm in carrying on.

So following the colour coding; or rather tiny little black or gray tabs of material on the end of the pole sleeve that I hoped was what the instructions were referring too, I carried on.

It wasn’t a easy as it should have been, not having the space to walk around the outside of the tent, it involves climbing over my garden wall (pictured about, it’s about 3f)

I also had to negotiate the poles with the shed and fence as fully extended they where pretty long (even the short one!)

And then came my garden furniture. With the help of a garden chair, a bench and some plant pots I was able to semi-secure the tent in place.

Image shows front quarter angle of erect tent with flower pots holding it in place with the side door open

Image shows side view of tent with door panel open, against the low garden wall and with Guide Dog Fizz looking inside

It was perfect!

The guide ropes and zip toggles are all light blue, there are tension bands on the inside and it has a ‘lip’ to save the weather getting in, should it be wet.

And the added bonus is that I only have to duck my head ever so slightly to move around.

It was hot, it was tricky; but oh wow it was fun!  And I did it all by myself. I was bursting with pride, I sent the photos to a friend with the simple of caption

Look what I just did, not bad considering, am knackered now.

Woth the guide time of 15 minutes, with the advisory that first pitch may take slightly longer, I was happy when I discovered it took me and hour.  Some people may not feel that is something to be proud of, but for someone who has never pitched a tenth before, who has considerably limited vision and who has no help either with reading the instructions or pointing out where the pole sleeves were…… I am totally amazed and proud with my achievement.

…… Now to take it down!

In comparison that took 30 minutes, it was a simple reverse of the pitch.  I folded and rolled my tent, then the ground sheet and even managed to get it all back in the bag!  It wasn’t quite as pretty as when I took it out, but with a quick sitting on to help remove the air.  It was done and ready to put away for camping later next month.

Image shows tent bag with tent inside sat out in the garden on patio.

Now to see how long it takes to pitch in a field !!

I don’t have baggage… I have a full matching set of cases

I may have written about this before, many years ago a friend referred to my past and my baggage as a complete matching luggage set.

Recently I have been undertaking counselling for my anxiety and depression,  which in turn has lead me to get this lovely (not) large set of cases out of the dark parts of my mind.

And I have not been enjoying dusting them off or opening them up.

However, the past can have its uses.

It can on the surface have perfect vision.

It can also offer comfort.

However, one thing to remember is that the past is somewhere you once lived.  Not somewhere you can revisit to alter.

It is behind you with no re-entry allowed.

It is interesting to think that it can hold the keys to unlocking the future though!

Yes, this post is full of metaphors, but what can you expect at 2.30am after an evening of reflection with friends?

It was not an evening fuelled with alcohol, although maybe too much ginger ale Fizz?

Anyway, I digress…….

As part of my current therapy sessions I am looking at and deconstructing my own core beliefs, my rules, my ‘coping mechanisms’ and eventually this will lead to breaking habits of a lifetime and learning to change, learning to give myself some slack and to (probably most importantly) be able to spot when I am falling into old habits; being able to break them.

After all ‘rules are made to be broken’ (last metaphor I promise!)

Anyone who has undertaken the NHS’s iTalk therapy will have an understanding of what I am talking about.

It is based on CBT – Cognitive Behavioural Therapy.  A therapy that I did learn of during my own counselling courses, but not one that I followed in great detail…. for the NHS is is a good therapy, it is one that can be provided on either a face to face basis (which I have) or over the phone, saving many ‘man hours’ overheads along with additional anxieties for some who are in receipt of the telephone consultations.

CBT is largely known as a talking therapy, it has many different ‘formulations’ so can be tailored to an individual needs much easier and quicker than some other therapies.

Diagram showing the 3 points of CBT. Thoughts, emotions and behaviours. The diagram explains how any one of the three can start an anxiety, but how no matter which of the three, between emotion, thoughts and behaviour they can easy feed from each other and create a downward spiral.

It is a fascinating therapy and one that I am only just learning.  However it is one that I can already see as a great working theory that has so much to teach me.

So, watch this space……. I may find a way to expand on this soon.

I have a question for you

it is time for me to ask for you to help me.

If I were to write a book, giving in sight into my life and how I have got myself in and out of many a situation.

Would you read it?

I am talking raw emotion, sarcasm and plenty of giggles.

What would you find interesting to read about?

Can you please be so kind as to comment below and help me with some research xx

Many Thanks xx

 

10 days ago I climbed a Cheese-Grater !!

Ten days ago I CLIMBED A CHEESE-GRATER:  All 225m plus a little extra for good measure.

It seems so much longer than 10 days.  Part of this is because my hands are shredded like they were after The Gherkin Climb, which although it was a much shorter climb that this one, it was at a time when I firstly hadn’t been climbing very long and secondly I wasn’t as physically fit as I am now.

I won’t lie, it was hard.

It was emotionally exhausting.

It was uncomfortable.

And almost a hard slap in the face to how differently I could see and hear inside the climbing centre.  So much so that at one point mid-climb that found me 2/3rds of the way up a wall I strategically removed and dropped my hearing aids into the awaiting hands of my climbing partner.

During the climb we had the additional media of not one but two GoPro (like) pieces of recording equipment.  We took lots of footage, we shared ‘live’ videos on Facebook during the challenge.  We do however have a fair amount of editing to do before we can share the ‘helmet’ footage or even the footage I didn’t realise was recorded.

This editing is only to remove some of the ‘colourful language’ used, we also have to mindful of copyright on music that was being broadcasted in the background!

It is coming together though, there is some fantastic footage of both myself and Simon my climbing partner accessing and defending the wall.  Simon even talked through descriptively on his final climb!

The support, emotionally, encouragingly and financially have been higher than I ever expected.

At the time of writing this post, HelpTeeHear had raised £900 online and a further £100 off-line.  That is One-Fifth of the total hoped for.

So for now, I say thank you; THANK YOU; thank you.

Taking my volunteering to the next level

Having supported my childrens’ Scout Group for a few years on the Exec committee I recently stood up to change roles.  I stepped off of the Exec to take up a role as an Assistant Cub Scout Leader in the pack that I have I been helping out at regularly on their evening.

The whole group has made me feel so welcome and supported.  They have never seen my ‘disabily’ as an issue, all they have ever asked of me is to show them my ‘abilities’ ….. The children are so acception, they have the most wonderful questions.  And they all adore Fizz (which is always a bonus)

I have to attend and interview with The District Commisiioner, undertake a meeting to discuss my disabilities and the impact that may have on my role.  I have to undertake training, but all of that just fills me with excitement.

I as a child never attended anything like this, no Brownies or Girl Guides for me. And as my sight changed, I never saw camping as something I would do.  Having joined in a weekend camp last September, I realised just how managable camping would be.  Although not in the small 2 man pop up tent I borrowed.

I still need some luxuries if I am to do it all again…..  Simple things, like being able to stand up, and having shared a tent with Fizz, a separate bedroom area is a must.

Oooohhhhhh I can feel a shopping trip coming one!

Would you flip a coin on it?

This is a much more personal and private post.  One that I have thought of writing for some time, yet not found the courage to put it into words.  This is true, raw emotion.  Please comment if you wish.

Sight loss, hearing loss, illness, disability; all of these can affect your mental health and mood.

I have battled with depression for many many years.  It isn’t (for me) something that is fixed by medication.  In addition to being a trained counsellor myself, i have undertaken many various forms of therapy; from CBT to mindfulness and many in between.  Depression isn’t easily or quickly fixed.  It often takes many ‘trial and error’ theories, after all as a human, I am in my own way unique.

My sight is degenerative, and in recent months I discovered that my hearing is also digenerative. This by its nature means that I have not as yet come to terms with it.  With the world around me ever changing (because of how I can see and hear it). I find many of the new challenges upsetting and difficult to deal with.

In very recent months I have found this particularly hard.

I found myself thinking and analysing everything much more.  This found me in a very low, downward spiral.  A spiral that I could find no way out of.

This was compounded from my current therapy sessions I have been undertaking with iTalk.  By looking at many of my demons up close and personally, I found it all too much.

I found myself alone, not able to approach my friends.  Not able to ask for help.  I found myself bursting into tears at ANYTHING. I couldn’t eat without being ill, I couldn’t drink coffee without being sick.  I couldn’t see a way to carry on.

A question Doctors and counsellors ask,

Do you feel like hurting yourself or that you would be better off dead?

I could answer this, my answer was always “No.” not because I was lying to them, but because it wasn’t the right question.  Had they asked:

Do you think everyone would be better without you?

They would have got a completely different answer.

I felt that I was just someone who was in everyone’s way, someone they pitied, someone they ‘put up with’ but not as someone who would be missed if I was no longer here.

I never sat down and thought of it as dying, committing suicide or harming myself.  I thought of it instead as improving others lives.  By not being here they could all get on with living, my children wouldn’t have to worry about me, they wouldn’t have to ‘miss out’ on doing fun things, because I am not able to drive, or run around with a ball.  They would also no longer have to cope with going between me and their dads.  Especially Lawrence, who seems to be particularly sensitive and worried about saying something that may upset me.

That they would be much happier not having to help a disabled mum.

I thought my best friend would be happier too.  Instead of having me bother him with texts and emails, he could live his life, enjoy his children and make a future for himself without me being like a noose around his neck.  Someone he felt obligated to ‘put up with’, someone who had made the mistake of being nice too at a difficult time and getting stuck with.

Without me, he could be happy.  Me not being here would be one less stress for him in his already stressful life.  And I felt similarly about other friendships.  I don’t have any family, they have already told me how they don’t want me.   So I thought I would be making the best decision, I thought I had decided that it was best for everyone if I just  wasn’t here anymore.

I shut myself off, I lied to friends who asked “how are you?’

I kept putting things off, I didn’t walk the dogs, I didn’t do the housework, I didn’t write in my bullet journal.

I did however call Samaritans.

I apologised for wasting their time, I spend just under 3 hours on the phone to a woman who said her name was Beth, she asked me about my family, my home, my children.  We talked for a long time and I can’t remember most of it.  I remember there were lots of tears, lots of apologies from me (anyone who knows me well will tell you how good I am at saying sorry-when actually I don’t need to)

Speaking with Beth, I found myself feeling I ‘needed’ to go to my counselling appointment in the morning.

For each counselling appointment I am asked to complete an online questionnaire.  And for the first time in about 10 days.  When I arrived at my appointment, my counsellor asked me about my questionnaire answers and scores.

She asked me WHY?

And then she did something I never thought I would ever hear, it is most definitely not something I came across in my counselling training  (although, I haven’t yet completed my degree level)

She asked me to score on a level of 1 to 10 how much I wanted to ‘not be around anymore..

My answer was 6.

She asked me how I thought about doing it?

I didn’t know that bit, although rationally I told her I didn’t want someone who knew me to find me, I told her I wanted it to be a doctor or nurse, or someone else who has been trained to see dead people.

She asked me if my children would understand?

No, they wouldn’t understand.  But after the initial upset, they would grow up with their families and be happy without me.

And then, she said this:

You say that you are over half certain that people would be better off without you here? So lets flip for it.  Heads you end your life and Tails you carry on.  Shall we do that? Leave it to the flip of a coin?

In my head I was thinking ” Are you wanting me to do this?’ But what I said, was even a shock to me,

NO! You don’t decide this on the flip of a coin.  That is just stupid, deciding on something so final and leaving it to chance.

She then abruptly changed the subject and asked me what I found relaxing.  And we spoke no more of it.  We didn’t need to, because even though the conversation had been upsetting, the reality of my thought hit me as if i had walked into a lamppost.

Focussing on relaxation and choosing a list to pick at least one thing off each day, made for a much more enjoyable week.  I also had my charity climb to do.  I still couldn’t keep much of my food in, but I had made sure I drank plenty.  And although scared and feeling I was a failure, the climb was not just an event I HAD TO DO, it was the ultimate metaphor….. THE ONLY WAY I COULD GO AND UP I WENT.

It was exhausting, I struggled and feel that even though I did complete it, that I let my friends down, that I failed and that even though I did my best and gave my all, that actually it wasn’t enough (but that’s for another time)

I returned to my counsellor again after the climb, again completing an online questionnaire before going.  And this time my counsellor commented on the reduction of my scores and improvements.

My counsellor asked me to recap on what had happened in our previous session, she asked me what had changed?

So, I told her, I told her how I initially thought the previous week that she had actually been trying convince me that I should end my life, but that when I had calmed down, when I had thought about it and when I had relayed some of it (I couldn’t face telling her all) to my friend, that I had actually realised what the purpose of the direct questioning had been.

My counsellor confirmed that she too had reflected with her supervisor on our session, and how she had been able to tell that although I was upset that this form of directness was actually making me think.  She was never mocking me, or thinking me stupid.  She was simply facilitating me to think.

She also explained that had I answered differently to the question of flipping a coin, that she would have instantly notified her supervisor.  Putting in place several safe guarding options. This is something she had told me about in our very first session, as she had explained that both her safety and my safety were key.

In addition to seeing my counsellor, I have been on half weekly visits to my GP.  I explained my session to her, to which she was impressed and felt that she would take that back to her fellow doctors.

Suicide and the thought of harming yourself or wanting to ‘stop getting in other peoples way’ is not an easy conversation to have, it was not easy for me to admit these thoughts, this feeling, it is not ‘crying wolf’ It is a serious emotional and mental health issue.  One that you should not ever apologise for having, it is not ‘stupid’ it is not ‘weak’ it is simply that you cant see a way forward.

You don’t need to apologise for hounding your Doctor, for calling the Samaritans, turning up at your local A and E Department if you can’t think of anywhere else to turn or even calling for an ambulance.

There are plenty of people who want to help.

And help you they will.

 

 

 

 

 

Taking my time to come down !

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Would you be my eyes?

Watching a film earlier today with an additional audio descript soundtrack; my son asked me

What does blue look like if you can’t see?

A question that made me think, I asked him what he thinks of when he thinks of the colour blue, to me it is the sky, the sea and swimming pools.

But mum, what if you had never seen before? What would blue look like?

And so I decided to write this post, I couldn’t answer my sons questions; but I have told him I will, I just need to do a little research first !!

For as long as the written word has existed there have been ways of evoking images from it.

Abjectives, Verbs, Nouns, connotation, yet these all rely on you knowing what such objects look like. In my research of this subject I have found something, something that was buried at the back of my brain with all of my other Secondary Educational learnings;  Pathetic fallacy – where the weather in the story or written word mirrors the emotion of the scene or the people in it. For example, when it is very hot the characters are agitated or when it is foggy, mystery is evoked. This is used to adds atmosphere to the writing and gives clues to the reader as to what is to come, especially if the weather is described before the event.  Just as many horror movies occur on dark stormy nights.

Do you need to know what weather looks like to understand it?

No, as someone who enjoys every type of weather and the changing seasons this is one element of life that I can use my other senses to understand.  Weather can be truly ‘FELT’ the hot sun on my skin, the drizzly rain, the north-easterly breeze.  Fog comes with the additional sounds of fog horns (living on this coast these can be heard miles in land) Mist gives a dampness to the air that isn’t present when it rains, morning dew has a smell to it, a storm too can have its very own smell and it’s not just thunder that makes a noise.

Weather can’t explain colour or shape though, although it works very well for emotion.

So, I am back at the beginning.

How would you describe the colour blue?  Without using the word, what does blue look like?

I have had sight and I have been fortunate to be able to see and remember colours, images, items.

Even though now my perception of colour is greatly altered, I can only really see the difference between orange and red when they are together and everything I see has a kind of haze or veil over it, so isn’t as vivid or true as it once were.

My hunt for answering my sons questions will continue, but for now; humour me?

Please reply to this blog post with your description of the colour blue.

No judgement will be passed, no humiliation with be sort.  Just an intriguing mind looking for help.

Thank You x

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